Books for Oncology - Parents

American Childhood Cancer Organization

Along The Way, Documenting My Child’s Cancer Journey A logbook that provides a way to document medical treatments, hospital contact information, treatment expenditures, and local resources. It also contains information about clinical trials, treatment procedures, blood counts, side effects, a journal section, and a place to take notes. A Parent’s Guide to Clinical Trials A concise reference guide which explains the process and structure of clinical trials in easy to understand language A Parent’s Guide to Enhancing the Quality of Life in Children with Cancer A 261-page book written about childhood cancer from the parents and clinicians point of view. Educating The Child with Cancer: A Resource for Parents and Teachers An essential resource for families who have faced childhood cancer. Written by researchers in the field, and balanced with parents’ personal experiences, this 334-page book focuses on educational issues for children treated for cancer. Understanding the Journey, A Parent’s Guide to DIPG A 368-page comprehensive book that guides the family whose child has been diagnosed with a diffuse intrinsic pontine glioma through this difficult diagnosis. Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG, including: diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radio sensitizers, surgery, chemotherapy and biologics.

https://www.acco.org/books

Childhood Cancer Guides

This group has published books for families of kids with cancer and survivors of childhood cancer. Books are a mix of medical information and books for parents and children.

www.childhoodcancerguides.org

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