Books for Oncology - Parents

American Childhood Cancer Organization

Along The Way, Documenting My Child’s Cancer Journey A logbook that provides a way to document medical treatments, hospital contact information, treatment expenditures, and local resources. It also contains information about clinical trials, treatment procedures, blood counts, side effects, a journal section, and a place to take notes. A Parent’s Guide to Clinical Trials A concise reference guide which explains the process and structure of clinical trials in easy to understand language A Parent’s Guide to Enhancing the Quality of Life in Children with Cancer A 261-page book written about childhood cancer from the parents and clinicians point of view. Educating The Child with Cancer: A Resource for Parents and Teachers An essential resource for families who have faced childhood cancer. Written by researchers in the field, and balanced with parents’ personal experiences, this 334-page book focuses on educational issues for children treated for cancer. Understanding the Journey, A Parent’s Guide to DIPG A 368-page comprehensive book that guides the family whose child has been diagnosed with a diffuse intrinsic pontine glioma through this difficult diagnosis. Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG, including: diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radio sensitizers, surgery, chemotherapy and biologics.

Childhood Cancer Guides

This group has published books for families of kids with cancer and survivors of childhood cancer. Books are a mix of medical information and books for parents and children.

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