A-T Children’s Project

Raises funds to support research projects and scientific conferences aimed at finding life improving therapies and a cure for Ataxia-Telangiectasia.

Children’s Tumor Foundation

 Provides education, resources and promotes research for Neurofibromatosis (NF1/NF2/Schwannomatosis).

Li-Fraumeni Syndrome Association

Provides education, community events, awareness, and webinars regarding LFSA.

Neurofibromatosis Network

Provides education, support and networking for those affected by neurofibromatosis.

PTEN Hamartoma Tumor Syndrome Foundation

Provides education, financial support, and supports research for PTEN harmartoma tumor syndrome.

Texas Neurofibromatosis Foundation

Provides education, support, advocacy and funds research for neurofibromatosis (NF1/NF2).

Tuberous Sclerosis Alliance

Provides education, support and research regarding tuberous sclerosis.

Von Hippel-Lindau Alliance

Information and support to families with the rare familial disorder, Von Hippel Lindau Syndrome. Includes a reference handbook for people with VHL, their families and support personnel.

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