A-T Children’s Project
Raises funds to support research projects and scientific conferences aimed at finding life improving therapies and a cure for Ataxia-Telangiectasia.
Children’s Tumor Foundation
Provides education, resources and promotes research for Neurofibromatosis (NF1/NF2/Schwannomatosis).
Li-Fraumeni Syndrome Association
Provides education, community events, awareness, and webinars regarding LFSA.
Provides education, support and networking for those affected by neurofibromatosis.
PTEN Hamartoma Tumor Syndrome Foundation
Provides education, financial support, and supports research for PTEN harmartoma tumor syndrome.
Texas Neurofibromatosis Foundation
Provides education, support, advocacy and funds research for neurofibromatosis (NF1/NF2).
Tuberous Sclerosis Alliance
Provides education, support and research regarding tuberous sclerosis.
Von Hippel-Lindau Alliance
Information and support to families with the rare familial disorder, Von Hippel Lindau Syndrome. Includes a reference handbook for people with VHL, their families and support personnel.