Heart Defects

The American Heart Association and The Children's Heart Foundation

To help further lifesaving research for congenital heart defects (CHD), the American Heart Association/American Stroke Association and The Children’s Heart Foundation are joining forces to help tackle the world’s number one birth defect: CHDs.

http://www.heart.org/en/health-topics/congenital-heart-defects/congenital-heart-defects-tools-and-resources/the-american-heart-association-and-the-childrens-heart-foundation

National Association for Children’s Heart Disorders, Inc.

We firmly believe that awareness is one of top priorities in the fight against congenital heart defects. We have created a wide variety of awareness products that are not specific to any group or organization. They were created with the sole purpose of raising awareness of congenital heart defects. 

https://kidswithheart.org/page/resources

The Children’s Heart Foundation

The Children's Heart Foundation (CHF) was founded in 1996 and is the country's leading organization solely dedicated to funding Congenital Heart Defect (CHD) research. The mission of CHF is to fund the most promising research to advance the diagnosis, treatment, and prevention of CHDs.

http://childrensheartfoundation.org/about-chf/fact-sheets

Children’s Heart Network

The Children’s Heart Network is a provincial non-profit organization offering support, information, and education to families, children, and youth who are living with acquired or congenital heart disease (CHD). If your child or someone you love has been diagnosed with heart disease, we are here to help.

https://www.childrensheartnetwork.org/resources/helpful-links/

Congenital Heart Disease Is Scary for Families. Here’s Where to Turn for Help.

General Article

https://health.usnews.com/health-care/patient-advice/articles/2018-06-26/resources-for-families-dealing-with-congenital-heart-disease 

Pediatric Congenital Heart Association

The Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.” We are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.

http://conqueringchd.org/

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